Thursday, July 14, 2016


13 January 2016

Doctors visit today again.  Simone had to draw extra blood for the Chimera Test they have to do. This test shows how her blood is handling the new bone marrow.  It takes a few weeks before it comes back. But Dr Brittain will let us know as soon as he has the results.  They still clean her J- Line every week when we go through, this is compulsory to keep out any infections.  The most painful part in cleaning the J Line is getting the plasters off.... it hurts like H.... Simone says...  And I can believe it just by watching her face. Not a pleasant experience.

She had her next session with the SHS serum two bottle later and we are almost ready to go home.  The only thing with the Serum is it makes her nauseous. She battles to eat which isn't great as she cant afford to lose too much weight.  Eating like a bird

Blood test today:

Haemaglobin 10.8
Platelets 280
White Cell Count 1.9
Neutrophils 1.3

Had to do another Bone Marrow Biopsy to make sure all the Cancer is still in remission.  This is very painful for Simone as she cant move around on her own too painful to pull herself out of bed.

Also received a great gift today - Sister Velna gave Simone a letter from her German Donor... So exciting the only thing is we can only communicate through the Registry but cant meet for 5 Years. Cant wait for the day that Simone and her Donor can meet.

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