21 January 2016

Cytomeglavirus - CMV  has reared its ugly head unfortunately...... this is a common thing after a transplant. As the Dr explained to us that we as South Africans are all born with it, but due to Simone's donor being an international donor they do not have CMV in their bodies. Simone has to go through the process of taking tablets to clear this up.. Shouldn't take too long..

20 January 2016

Back to Pretoria for our next appointment today. SHS serum. Her white cell Count is a little low today so Jason will be giving Simone Neupogen Shots to help boost her White Cell Count. We received Simone's Bone Marrow Biopsy results back all is CLEAR!!! Cause for celebration...
We also heard from the Dr that her Bone Marrow is 100% Male which means the donor Bone Marrow has taken over which is a good thing, this is what needs to happen! Simone's chest has started feeling but we were told this is normal, her feeling is very mild but this is all part of the process.  We have noticed other people with the same thing, and there's is a little worse than Simone.
She is making new skin... This is quote unusual for us. It is amazing what we learn everyday...

13 January 2016

Doctors visit today again.  Simone had to draw extra blood for the Chimera Test they have to do. This test shows how her blood is handling the new bone marrow.  It takes a few weeks before it comes back. But Dr Brittain will let us know as soon as he has the results.  They still clean her J- Line every week when we go through, this is compulsory to keep out any infections.  The most painful part in cleaning the J Line is getting the plasters off.... it hurts like H.... Simone says...  And I can believe it just by watching her face. Not a pleasant experience.

She had her next session with the SHS serum two bottle later and we are almost ready to go home.  The only thing with the Serum is it makes her nauseous. She battles to eat which isn't great as she cant afford to lose too much weight.  Eating like a bird

Blood test today:

Haemaglobin 10.8
Platelets 280
White Cell Count 1.9
Neutrophils 1.3

Had to do another Bone Marrow Biopsy to make sure all the Cancer is still in remission.  This is very painful for Simone as she cant move around on her own too painful to pull herself out of bed.

Also received a great gift today - Sister Velna gave Simone a letter from her German Donor... So exciting the only thing is we can only communicate through the Registry but cant meet for 5 Years. Cant wait for the day that Simone and her Donor can meet.

13 January 2016

Doctors visit today again.  Simone had to draw extra blood for the Chimera Test they have to do. This test shows how her blood is handling the new bone marrow.  It takes a few weeks before it comes back. But Dr Brittain will let us know as soon as he has the results.  They still clean her J- Line every week when we go through, this is compulsory to keep out any infections.  The most painful part in cleaning the J Line is getting the plasters off.... it hurts like H.... Simone says...  And I can believe it just by watching her face. Not a pleasant experience.

She had her next session with the SHS serum two bottle later and we are almost ready to go home.  The only thing with the Serum is it makes her nauseous. She battles to eat which isn't great as she cant afford to lose too much weight.  Eating like a bird

Blood test today:

Haemaglobin 10.8
Platelets 280
White Cell Count 1.9
Neutrophils 1.3

Had to do another Bone Marrow Biopsy to make sure all the Cancer is still in remission.  This is very painful for Simone as she cant move around on her own too painful to pull herself out of bed.

Also received a great gift today - Sister Velna gave Simone a letter from her German Donor... So exciting the only thing is we can only communicate through the Registry but cant meet for 5 Years. Cant wait for the day that Simone and her Donor can meet.

12 January 2016

Made arrangements with Mr Workman at Assumption for Simone as she cant go back to school till her 100 days Post Transplant are up...  She wants to still keep up with work which is good for the brain. Keep her mind stimulated.

6 January 2016

Through to Pretoria  to see Doctor.  Drawn blood when we arrived.

Haemaglobin 9.9
White Cell Count 1.86
Platelets 327
Lymphocites 0.13
Neutrophils 1.29

Crp 1

Kidney function has improved, we are very happy about that.

All good Dr is very happy with her progress.

Took a drive back to the river for the last few days before Cole has to go back to school. Raining on and off but it is lovely to be back.

 

5 January 2016

We had to head back to Jhb today as Simone's Dr appointment is tomorrow and the driving is very tiring for her.  Had a great time relaxing at the river.