3 January 2016

We went to the Nel's for lunch today, thank you to oUma Nel Paul's Mom for the greta work she did putting the blanket together.... All everyone's hard work in making all those beautiful squares. Simone really appreciates all your beautiful work.  The blanket is so much bigger than any of us could have imagined.... it is more like a queen size blanket than a little Single Bed Blanket. And Ouma managed to make a pillow case too!!! Wow it is just so special.

Thank you again to all of your amazing people!!!

Simone had some other Special visitors at the lodge over the holidays too... The Vieira Family came to visit what a wonderful weekend it was.

30 December 2015

We received the go ahead from the Dr to go out to the River for the New Years weekend....!!!!
WooHoo!!!

We are all so excited to be going out there.

Simone had to have blood drawn today. Blood is still looking good, just two of her medications are toxic to her body, so her Dr has taken them away for now.

Haemaglobin 10.1
White Cell COunt 2.74
Plate;ets 239
Lymphocites 0.15
Neutrophils 1.99
Kidney Function 141 (it was 150 last week, its coming down!!)

Crp - 4 Yeah its below 5 where it needs to be.

Great to be at the River relaxing...

25 December 2015

Simone was so excited to be home for Christmas that she couldn't help but stay awake until Midnight..... Before midnight we took and Cole around the neighbourhood looking at all the beautiful Christmas Lights.

23 December 2015

We had to be in Pretoria early today 08H00 as Simone is going to have her second treatment of SHS Serum, since leaving the hospital.  Her counts were looking good too.

Haemaglobin 11.4
Red Cell Count 4.25
White Cell Count 3.06
Platelets 291
Neutrophils 1.86
Lymphocites 0.25

CRP - Infection count 9 (35 when we left Hospital)
Her Kidney function has increased this is due to the Prograf medication she is on not good but the Dr's have it all under control. 157 (49 - 90)

The Dr explained to us that it takes the Lymphocites about a year to grow.
Simone will be on the SHS serum for the next 12 weeks this helps her stem cells to grow.

20 December 2015

Today Simone wanted to go for a quick walk around the our complex.  We couldn't go for too long as her skin is very sensitive to the sun, she breaks out in a rash. Its amazing what all these side effects that she is experiencing...

17 December 2 015

Simone didn't have such a great night sleep.. A lot of pain in her shoulder Clavicle and flushes all night. We decided to give Dr Augustyn a call in the morning to see what it could possibly be.  He recommended that we come through to Pretoria to do some Xrays to make ssure there is no clots or to see if her J-line hasn't moved.

After taking X rays we went back to see the Dr, he checked her X Rays all in order it might just be some air moving around the pipe. But it should work its ways out in a couple days. We on our way back to Jhb!!! YEAH!!!!

16 December 2015

WOW!!!! Such a great feeling to have Simone home at least.. Her Brother is still away in East London having fun with his cousins.