Simone's Journey
Sunday, November 6, 2016
13 May 2016
There are anti-bodies in Simone blood that are causing her blood to drop regularly. The Dr's are going to request that they can try Mabthera on Simone.. It is a very pricy drug cost R25 000.00 per dose and she will need four doses.
Some of the side effects are hot spot (rat tail on you lower back), tightening of the chest, back pain, hot flushes, temperatures and high blood pressure. Hectic things she has to go through....
Over the next few weeks Simone will be in and out of hospital receiving two pints of blood everytime. It is also not healthy to receive too much blood due to all the iron in the blood she is receiving.
Saturday, August 27, 2016
9 February 2016
They drew blood today again to check the CMV Count it was 153 000 this week it is 60 939!!!
Today is the last day of the Polygam.... So Happy
Haemaglobin 9.7
Platelets 191
White Cell Count 2.63
Neutrophils 2.25
Lymphocites 0.22
CRP 2
Kidney Function 56
10 February 2016
Restless night last night. Cymvene will be reduced.
Had to have Neupogen as her white cell count is too low.
She has to have Phenegran everytime she has the Polygam as she has reaction to it everytime.
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